Connecting Rare Disease Patients Globally - RareConnect

RareConnect promotes global conversation and collaboration to improve the lives of rare disease patients and assist the organizations that serve them. RareConnect is an online social network for patients and families who live with one of over 6,000 rare diseases to connect with one and other to support and share vital experiences on aspects of living with a rare disease. Organized into disease specific communities, the platform also provides links to quality information, clinical trials and research publica

OVERVIEW

The web site rareconnect.org currently has a traffic ranking of zero (the lower the superior). We have examined thirty-five pages inside the site rareconnect.org and found one thousand one hundred and eighty websites interfacing with rareconnect.org. We were able to discover one contacts and addresses for rareconnect.org to help you reach them. We were able to discover four social web accounts possessed by rareconnect.org. The web site rareconnect.org has been on the internet for six hundred and seventy-six weeks, twenty days, twenty-two hours, and sixteen minutes.
Pages Crawled
35
Links to this site
1180
Contacts
1
Addresses
1
Social Links
4
Online Since
May 2011

RARECONNECT.ORG TRAFFIC

The web site rareconnect.org has seen varying levels of traffic through the year.
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RARECONNECT.ORG HISTORY

The web site rareconnect.org was registered on May 29, 2011. It is now six hundred and seventy-six weeks, twenty days, twenty-two hours, and sixteen minutes old.
REGISTERED
May
2011

WEBPAGE AGE

12
YEARS
11
MONTHS
19
DAYS

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WHAT DOES RARECONNECT.ORG LOOK LIKE?

Desktop Screenshot of rareconnect.org Mobile Screenshot of rareconnect.org Tablet Screenshot of rareconnect.org

CONTACTS

Contact Privacy Inc. Customer 0131358400

Contact Privacy Inc. Customer 0131358400

96 Mowat Ave

Toronto, ON, M6K3M1

CA

RARECONNECT.ORG SERVER

Our parsers discovered that a lone page on rareconnect.org took one thousand four hundred and ninety-two milliseconds to come up. I identified a SSL certificate, so therefore our parsers consider this site secure.
Load time
1.492 secs
SSL
SECURE
Internet Protocol
178.33.225.25

NAME SERVERS

ns10.dnsmadeeasy.com
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SERVER OS AND ENCODING

We found that this website is operating the nginx/1.6.0 server.

HTML TITLE

Connecting Rare Disease Patients Globally - RareConnect

DESCRIPTION

RareConnect promotes global conversation and collaboration to improve the lives of rare disease patients and assist the organizations that serve them. RareConnect is an online social network for patients and families who live with one of over 6,000 rare diseases to connect with one and other to support and share vital experiences on aspects of living with a rare disease. Organized into disease specific communities, the platform also provides links to quality information, clinical trials and research publica

PARSED CONTENT

The web site rareconnect.org states the following, "RareConnect a partnership of eurordis and nord." We saw that the website said " Cutis marmorata telangiectatica congenita CMTC." It also said " Hereditary Leiomyomatosis and Renal Cell Cancer HLRCC. Mastocytosis and Mast Cell Activation Disorders."

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