Connecting Rare Disease Patients Globally - RareConnect
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Increasing Awareness, Care and Treatment for CAPS. We are here to help people with autoinflammatory diseases. Try out our searchable autoinflammatory disease digital database based on our comparative chart! Click here to find out more.
Teaching about recurrent fevers in a small-group setting.
Utah Rare Teen Photo Shoot 2016. Using Photography to Raise Awareness on a Global Level. Recent Blog Posts-Please visit our Blog for more stories from our Angels. Michelle-Fibrous Dysplasia, Ehlers-Danlos, Idiopathic Hypereosinophilia.
Association for the Wellbeing of Children in Healthcare. AWCH is a national organisation advocating for the needs of children, young people and families within the health care system in Australia. Cnr Victoria and Punt Roads.
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Folliculin regulates fluid stress-induced mTORC1 suppression in primary cilia. The transcriptional landscape of tuberous sclerosis complex. 100,000 genomic insights into cancer and rare diseases.
The aim of Breathing Matters is to support the research carried out at UCL Respiratory. GET OUR PIN BADGES HERE. Find us, follow us, join us! We ar.
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Connecting Rare Disease Patients Globally - RareConnectDESCRIPTION
RareConnect promotes global conversation and collaboration to improve the lives of rare disease patients and assist the organizations that serve them. RareConnect is an online social network for patients and families who live with one of over 6,000 rare diseases to connect with one and other to support and share vital experiences on aspects of living with a rare disease. Organized into disease specific communities, the platform also provides links to quality information, clinical trials and research publicaPARSED CONTENT
The web site rareconnect.org states the following, "RareConnect a partnership of eurordis and nord." We saw that the website said " Cutis marmorata telangiectatica congenita CMTC." It also said " Hereditary Leiomyomatosis and Renal Cell Cancer HLRCC. Mastocytosis and Mast Cell Activation Disorders."ANALYZE SIMILAR WEBSITES
Rare Cool Photos, Books, Audio, Videos and Multimedia. Welcome to Rare Cool Stuff! Rare Cool Stuff Unltd. Specializes in top-quality repackages of rare, cool art, music, photography, video and more. Who We Are, What We Do.
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